Thankful Thursday, 7/30/09

Real Estate Sales Representative with RE/MAX Preferred, West Chester, PA, RS152252A RS152252A

My younger son Max has a rare eye condition called Familial Exudative Vitreous Retinopathy, or FEVR for short.  It is a condition that has something to do with the blood vessels to the retina and 90 percent of people who have the condition never have any symptoms.   When you do have symptoms, however, there is not much the doctors can do about the vision, their main goal being to save the physical eye itself.  Max has this condition in both eyes, with one eye being symptomatic.  His left eye has very low vision, but he does see something there and has peripheral vision.  I caught this when he was one and unfortunately, he was misdiagnosed for 3 years before the doctors realized what it was.  Thankfully, he has normal, if slightly near sighted, vision in his right eye and his retina specialist says that the only career he can't have with only one eye is an airplane pilot, so we are very thankful for the vision in his good eye.  He also says we have every reason to hope that his good eye will never become symptomatic, so that is what I pray for.  We went for our 6 month checkup as we always do today and I am thankful to report that all is well.  Max has the okay to get a contact lens for his good eye and we are going to that eye doctor on Monday.  I think Max is cute as can be in glasses, but at 13, he would like to start 7th grade without them.  His glasses protect his good eye, so I am somewhat nervous about an accident to his good eye, but as someone told me once, they build ships to sail the oceans, not sit in the shipyard, so I am once again, letting go and letting God, as the saying goes. So easy to say, and so hard to do.

My  20 year old had all 4 impacted wisdom teeth out yesteray and I am thankful he is such a trooper and that his pain is manageable.  Painful, but he is managing it. 

It's a glorious day today and while I would love to be by the pool, I am thankful to be taking buyers out this afternoon, having a settlement tomorrow, and buyers on Saturday and Sunday. 

My best friend had some scary tests done and the outcome was that all is well, so I am exceedingly thankful for that.  We had a lovely couple of days at the beach, just her and I, and it was nice to kick back and relax. 

Life is good.  I have my little blond haired boy JJ, at my feet as I type, the sun is shining, and both my boys are doing well.  I have a wonderful family, my mom, close friends.  What more is there?  Seriously.

JJ, of course!

Carpe Diem!

Posted by

Susan C. Mangigian

re/max preferred
1595 Paoli Pike, Suite 101,West Chester, PA  19380

610-719-1700 main office, 610-299-6237 cell 

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Comments 22 New Comment

Laura Cerrano
Authentic Feng Shui Expert
Feng Shui Manhattan Long Island

Susan, I, too  hope Max continues to do well.  I've heard of this condition on a show called "Medical Mystery" and that person was also misdiagnosed over and over again.  Lots of blessings to you and your family!

July 31, 2009 08:07 AM
JL Boney, III
Columbia, SC Real Estate
Russell and Jeffcoat

My Father has developed an eye condition in the past year that I won't even attempt to spell. I was just a sudden thing that happened, he's never even had to have glasses before.

July 31, 2009 03:11 PM
Loreena Yeo
Realtor® | Frisco TX Community Ambassador
3:16 team REALTY ~ Locally-owned Frisco TX Real Estate Co.

Life is in deed good. Best of all, life is awesome when you have friends watching out for you. Thanks for being my friend this weekend. It means so much to me that others who want to tear me down but then, there are those who will build you up.

August 03, 2009 09:22 AM
Mara Hawks
Inactive-2012 REALTOR - Homes for Sale Auburn Real Estate, AL
First Realty Auburn

Hi Susan, I hope Max will adjust to his glasses quickly, and have a wonderful new school year...give him all of our love and support...Life is GOOD! It's heartwarming to have, in words, little snapshots of your grateful and gentle heart... and I can never picture you without sweet little JJ...xox

August 03, 2009 11:00 PM
Tammy Lankford
Your Lake Sinclair Expert (706-485-9668)
Lane Realty

It's no wonder that I just adored you from the moment I first read a post you wrote.  I think we are somehow connected in this universe.  My Abi has ambliopia and does not see at all with her right eye.  The doctor told her the very same thing about a career.  I think Max looks great with his glasses too and I know just what you mean about wanting his good eye protected. 

I hope you are feeling all well now.  Don't like you to be sick.

August 03, 2009 11:05 PM

Susan Mangigian

Chester & Delaware County Homes, Delaware and Ches
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