Thankful Thursday, 7/30/09

Real Estate Sales Representative with RE/MAX Preferred, West Chester, PA, RS152252A RS152252A

My younger son Max has a rare eye condition called Familial Exudative Vitreous Retinopathy, or FEVR for short.  It is a condition that has something to do with the blood vessels to the retina and 90 percent of people who have the condition never have any symptoms.   When you do have symptoms, however, there is not much the doctors can do about the vision, their main goal being to save the physical eye itself.  Max has this condition in both eyes, with one eye being symptomatic.  His left eye has very low vision, but he does see something there and has peripheral vision.  I caught this when he was one and unfortunately, he was misdiagnosed for 3 years before the doctors realized what it was.  Thankfully, he has normal, if slightly near sighted, vision in his right eye and his retina specialist says that the only career he can't have with only one eye is an airplane pilot, so we are very thankful for the vision in his good eye.  He also says we have every reason to hope that his good eye will never become symptomatic, so that is what I pray for.  We went for our 6 month checkup as we always do today and I am thankful to report that all is well.  Max has the okay to get a contact lens for his good eye and we are going to that eye doctor on Monday.  I think Max is cute as can be in glasses, but at 13, he would like to start 7th grade without them.  His glasses protect his good eye, so I am somewhat nervous about an accident to his good eye, but as someone told me once, they build ships to sail the oceans, not sit in the shipyard, so I am once again, letting go and letting God, as the saying goes. So easy to say, and so hard to do.

My  20 year old had all 4 impacted wisdom teeth out yesteray and I am thankful he is such a trooper and that his pain is manageable.  Painful, but he is managing it. 

It's a glorious day today and while I would love to be by the pool, I am thankful to be taking buyers out this afternoon, having a settlement tomorrow, and buyers on Saturday and Sunday. 

My best friend had some scary tests done and the outcome was that all is well, so I am exceedingly thankful for that.  We had a lovely couple of days at the beach, just her and I, and it was nice to kick back and relax. 

Life is good.  I have my little blond haired boy JJ, at my feet as I type, the sun is shining, and both my boys are doing well.  I have a wonderful family, my mom, close friends.  What more is there?  Seriously.

JJ, of course!

Carpe Diem!

Posted by

Susan C. Mangigian

re/max preferred
1595 Paoli Pike, Suite 101,West Chester, PA  19380

610-719-1700 main office, 610-299-6237 cell 

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Comments 22 New Comment

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Jason Sardi
Your Agent for Life
Auto & Home & Life Insurance throughout North Carolina

Indeed, seize the day!  Patricia is right, the dog is adorable:)

Max is lucky to have such a caring and loving mother.  He is in good hands.


July 30, 2009 12:09 PM
Gary Woltal
Assoc. Broker Realtor SFR Dallas Ft. Worth
Keller Williams Realty

Susan, a great story of the delicate nature of life. It can all change in an instant of course and hopefully Max will do well with his eyes into adulthood. A lot of this stuff sometimes can be very scary can't it? I used to have glasses and contacts a big chunk of my life but due to some strange circumstances and surgeries I see fine with nothing now. Life has some unique twists and turns for sure.

July 30, 2009 12:59 PM
Richard Iarossi
Crofton MD Real Estate, Annapolis MD Real Estate
Coldwell Banker Residential Brokerage


As parents, we worry about our children more than they do. I'm glad Max is doing well now and pray that he continues to do well throughout his life.


July 30, 2009 01:12 PM
Robert Rauf
HomeBridge Financial Services (NJ)

I am thankful for SuzieQ and the fact that I can always get to see a photo of JJ at least 1x/week!  Time for a new ball, I think he popped that one!

July 30, 2009 01:24 PM
Fran Gaspari
"The Title Man" - Title Insurance - PA & NJ
Patriot Land Transfer, Inc.


I'll stand with you to pray for Max's eyes...!!! Thanks,   Fran

July 30, 2009 03:39 PM
Inna Hardison
Wordpress for Real Estate & Design, Print HaMedia Group
ha media group

Oh Susan, Carpe Diem indeed...:-) Max will be just fine, he totaly will, dahling. 

PS: I wanna smooch your puppy, right on the nose:-)

July 30, 2009 04:09 PM
Susan Mangigian
Chester & Delaware County Homes, Delaware and Ches
RE/MAX Preferred, West Chester, PA, RS152252A

Russell, I could start to add my friends here in the rain and it would be an even longer post... you being one of them!

Patricia, he is the cutest thing in the world.  He loves to play soccer with me and I kick a ball, any ball, and he runs ahead of it and turns around and puts his paw on it to stop it!  So cute!

Jason, I am lucky to have two such nice boys.  Max has a heart of gold and although he fights with his brother, he was bending over backwards trying to help him yesterday when we came home from the oral surgeon.  Mike could be nicer to his little brother, but other than that, a great kid... funny, smart, artistic and a momma's boy!  He even wears the t-shirt I bought he that says so!  Max wouldn't be caught dead in his!  And JJ is one cute little boy!



July 30, 2009 05:27 PM
Susan Mangigian
Chester & Delaware County Homes, Delaware and Ches
RE/MAX Preferred, West Chester, PA, RS152252A

Gary, life is like that.  Right after I wrote this, I went out to show houses, feeling fit as a fiddle.  I developed a killer sore throat and now can't swallow!  But, Max made marinara sauce for me and we're making penne so his brother can eat it too (still can't open his mouth all the way).

Rich, Max is a man of action and I have to have faith that all will go well for him.  Wonderful kid.  Thanks for the prayers.  xxoo

Robby, JJ did pop it but he loves it so I can't throw it away!

Fran, I would be proud to stand with you in prayer.

July 30, 2009 05:29 PM
Susan Mangigian
Chester & Delaware County Homes, Delaware and Ches
RE/MAX Preferred, West Chester, PA, RS152252A

Inna!  I know that Max will be fine because that is how it is supposed to be.  Our children have to be fine.  And I just kissed JJ on the nose from my friend Inna! 

July 30, 2009 05:30 PM
Don Rogers
Realtor, Broker, CDPE, GRI, OnullFallon MO & St Charles County MO homes
Keller Williams Realty Chesterfield


You also have breath to go along with all of the other wonderful things you mentioned.  Keep being an inspiration.

July 30, 2009 06:29 PM
Suzanne McLaughlin
Sabinske & Associates, Realtor
Sabinske & Associates, Inc. (Albertville, St. Michael)

Susan, Keep the faith. He should be fine.  He has the good sense of his mother and father to get him through.  And, he is a twig on your tree!

July 30, 2009 09:19 PM
Caren Wallace
Portland Caren Real Estate
John L. Scott Real Estate

Susan, Max is blessed to have a diligent Mother who takes such good care of him! The blessing of eyesight is invaluable and thank heaven that his is safe!

The wisdom teeth are a pain, both of my children went through that in the last couple of years and the pain is awful!

You always have a great attitude and I love to read your news! And of course JJ is precious!

July 31, 2009 04:25 AM
Paddy (Patricia) Pizappi
Real Estate Associate Broker Hudson Valley NY
RJ Smith Realty Real Estate Solutions

Wonderful list.  Great news about Max.  I am thankful for you my friend.  Enjoy your weekend and find some good places for the buyers you are working with.

July 31, 2009 05:49 AM
Gita Bantwal
REALTOR,ABR,CRS,SRES,GRI - Bucks County & Philadel
RE/MAX Centre Realtors

Susan, Beautiful post. You are blessed with good friends and family.

July 31, 2009 06:15 AM
Mike Saunders
Lanier Partners

Susan - just another post that I need to make me see that I need to shake this funk, thanks for sharing. Glad to hear that the outlook for Max is good. And you have a great attitude, you have to let him sail.

July 31, 2009 07:35 AM
Laura Cerrano
Authentic Feng Shui Expert
Feng Shui Manhattan Long Island

Susan, I, too  hope Max continues to do well.  I've heard of this condition on a show called "Medical Mystery" and that person was also misdiagnosed over and over again.  Lots of blessings to you and your family!

July 31, 2009 08:07 AM
JL Boney, III
Columbia, SC Real Estate
Russell and Jeffcoat

My Father has developed an eye condition in the past year that I won't even attempt to spell. I was just a sudden thing that happened, he's never even had to have glasses before.

July 31, 2009 03:11 PM
Loreena Yeo
RealtorĀ® | Frisco TX Community Ambassador
3:16 team REALTY ~ Locally-owned Frisco TX Real Estate Co.

Life is in deed good. Best of all, life is awesome when you have friends watching out for you. Thanks for being my friend this weekend. It means so much to me that others who want to tear me down but then, there are those who will build you up.

August 03, 2009 09:22 AM
Mara Hawks
Inactive-2012 REALTOR - Homes for Sale Auburn Real Estate, AL
First Realty Auburn

Hi Susan, I hope Max will adjust to his glasses quickly, and have a wonderful new school year...give him all of our love and support...Life is GOOD! It's heartwarming to have, in words, little snapshots of your grateful and gentle heart... and I can never picture you without sweet little JJ...xox

August 03, 2009 11:00 PM
Tammy Lankford
Your Lake Sinclair Expert (706-485-9668)
Lane Realty

It's no wonder that I just adored you from the moment I first read a post you wrote.  I think we are somehow connected in this universe.  My Abi has ambliopia and does not see at all with her right eye.  The doctor told her the very same thing about a career.  I think Max looks great with his glasses too and I know just what you mean about wanting his good eye protected. 

I hope you are feeling all well now.  Don't like you to be sick.

August 03, 2009 11:05 PM
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Susan Mangigian

Chester & Delaware County Homes, Delaware and Ches
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