Admiring parents who raise children with Down's syndrome

By
Real Estate Agent with ReMax Realty Services

 

Down’s syndrome is also known as trisomy 21 due to the presence of part or the entire third copy of the chromosome 21. Named after the British physician John Langdon Down who first described the syndrome in 1866, it can be detected after the baby was born or through prenatal screening. According to some statistics, about 80% of Down’s syndrome cases in US occur in mothers who are under 35 years of age. One person in every 800 individuals has Down’s syndrome.

 

Having a child with this defect might be very stressful in the eyes of individuals who do not have one in their family. The stressful scenario might be worse than we think considering the difficulties faced by parents who have to raise a child with Down’s syndrome. It is a lifetime commitment of parenthood as they need to look after the child from birth until they reach old age. The lack of intellectual, emotional, and physical capabilities of a Down’s syndrome patient contributes to the hardships faced by parents. Yet, it is very inspiring to see how some parents are capable of coping up well in dealing with raising a child with Down’s syndrome. There are parents who live normal lives and treat their Down’s syndrome child as a normal child as well. They raise the child well and consider him/her as a blessing that will fulfill their lives as parents.

 

How do parents cope up with problems associated with raising a Down’s syndrome child?

 

Acceptance is the first step for parents to cope up living with a child with Down’s syndrome. They have to realize that it is what God has given them, treating the child as a reward and not a burden. The parents need to deal with a wide range of emotions such as anger, sadness, disbelief, shock, and depression. The second important thing towards coping up is proper education and knowledge of the disability. Books, online sources, and forums are helpful resources to pick up essential bits of information. Regular consultations with medical professionals would do great leaps towards understanding what your child is going through and how you can respond to his/her needs.

 

Are there facilities/organizations that help parents raise a child with Down’s syndrome?

 

The answer is an echoing YES. Medical professionals will be your first sources of expert advices and tips. If you are living in Washington DC, the National Down Syndrome Society located on the 41st Street Northwest will relentlessly extend their helping hands in whatever capacity they can. The Kennedy Krieger Institute has various campuses throughout Maryland including the Montgomery County campus specifically called the Kennedy Krieger School at Academy Way in Rockville. This academic institute for special children can help you give proper education to your Down’s syndrome child to bring out the best potentials mapped in his/her genes despite the disability.

 

Various hospitals and clinics conduct information dissemination drives on how to raise children with Down’s syndrome and other learning deficiencies. There are special organizations that offer therapies and biofeedback not only for the Down’s syndrome patients but also to the parents as well in order to help them fully understand and accept the situation they are dealing with.

 

Admiration truly goes to the parents who have chosen to raise their children with Down’s syndrome despite knowing of the difficulties that will storm their lives along the way. Their bravery to give birth to these special children is enough reason to give them honors for great parenting!

 

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chromosome 21
trisomy 21
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john langdown down
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Rainmaker
295,454
Bud & Beth McKinney
RE/MAX UNITED - Cary, NC
Cary/Raleigh/Apex NC - The Team That Cares, RE/MAX United

Wonderful post, parents have a lot they could be dealing with nowadays and it is nice to see parents who have accepted the situation and are doing their best instead of dismissing the child all together.

Jul 05, 2012 07:18 AM #1
Rainmaker
447,863
Malcolm Johnston
Century 21 Lanthorn Real Estate LTD., Trenton, Ontario - Trenton, ON
Trenton Real Estate

Excellent post Bruno. God bless all the parents who have accepted the extra challenges of raising these special children and who go that extra mile because they understand the preciousness of human life in all its glorious forms. My hats go off to them.

Jul 05, 2012 07:25 AM #2
Rainmaker
177,110
Erv Fleishman
Realty Associates - Boca Raton, FL
Luxury Prop Specialist Realty Associates

There are two peaks in the age of mothers who have Down's Syndrome babies. The first occurs at age 27. The second is related to the older mother. After age 35 the incidence increrases with age. There is some suggestion that increasing paternal age also may matter. 

Parents of Downs Syndrome children should have genetic testing to understand if there is any genetic predispostion in them so that if they have other  living children they can be tested. Of course, the baby also should be tested so that one understands which genetic defect the child has. This does matter. It also will influence whether they are to have other children in the future. 

Remember, when dealing with "medical professionals" they can bring their own biases to the table. 

There is no one who will take responsibility for your child more then the parent.

Raising special children has it's moments. 

But ask yourself, why did I want a child. If it was to give love and nurture, then all children are equal. If it were to see what I could produce, then perhaps you should think again. 

When we take the landmarks that children attain, such as learning to ride a two wheeler, the parent of a special child will feel that much prouder and inner warmth when their special child masters the activity. 

I urge people to do a simple thing. When you are at a mall or on the beach, if you see a special child, say hello. That smile in return will make you want to do it again. 

 

Jul 05, 2012 07:44 AM #3
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Rainer
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Bruno Tarquinii

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